A girl with a rare diagnosis 20 years living at night and goes under the sun in a spacesuit (photo)

Девушка с редким диагнозом 20 лет живет по ночам и выходит под солнце только в скафандре (фото)

28-year-old woman from Morocco with a rare genetic disease forced to wear a massive mask, the suit, because the rays of the sun for her skin is very dangerous.

In two years, Fatima was diagnosed with a rare disease – pigment pigmentosum, a genetically determined allergic to the sun. The impact of UV rays on her skin very badly – Fatima is covered with painful freckles.

The skin Fatima can not recover after the aggressive effects of UV light, that it threatens not only direct sunlight, but under certain types of artificial light. Due pigmentosum Fatima prone to development of cancer. So for more than 20 years she has not been in the sun without his spacesuit, and the active time of the day for girls – the middle of the night.

“Wear a suit, which is called the NASA mask and gloves to protect themselves from the sun. My days differ from the days of other people – all the sun time I spend at home and start their business at sunset”, said Fatima.

Even on a cloudy day Fatima easily burn in the sun, and her freckles can easily turn into tumors that need to be removed. In addition to the suit, Fatima protects the skin SPF cream with protection 90 to be applied every hour. The Windows in her house covered with a special film not to miss the extra rays, even accidentally.

Despite many limitations, the girl leads an active life regularly publishes posts in Instagram and TikTok, participates in a TV show, meets with friends and relatives.

Девушка с редким диагнозом 20 лет живет по ночам и выходит под солнце только в скафандре (фото)

Девушка с редким диагнозом 20 лет живет по ночам и выходит под солнце только в скафандре (фото)

Девушка с редким диагнозом 20 лет живет по ночам и выходит под солнце только в скафандре (фото)

Девушка с редким диагнозом 20 лет живет по ночам и выходит под солнце только в скафандре (фото)

Девушка с редким диагнозом 20 лет живет по ночам и выходит под солнце только в скафандре (фото)

TikTok
Summer

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