“It was hell”: patients with cystic fibrosis required to purchase cheap generics

«Это был ад»: пациенты с муковисцидозом требует отказаться от закупки дешевых дженериков

Patients and parents of children suffering from mucoviscidosis created a petition demanding the change of FZ-44 “on public procurement”, under which purchased a cheaper product (generic). When life-threatening diseases it is important to purchase effective, and better than the original drugs, believe patients.

Roszdravnadzor has checked the availability of the necessary drugs and reported to the Ministry of health about the absence of problems, but about side effects generics, according to them, there is no information. However, patients claim that generics are ineffective and cause a lot of side effects.

“On the wave of import substitution in our Morozovskaya hospital where they treat people like me – children with cystic fibrosis, we can say the epidemic of terminal patients, mostly 13-15-year-olds – told the “Doctor Peter” 17-year-old Tatiana. She lives in St. Petersburg, moved with his parents from Moscow and medications is provided in the capital. – When I got to the Morozovskaya hospital, I stabbed the Russian antibiotic Meropenem, the temperature will not fall, there was diarrhea, vomiting, rash, swollen veins. Mother was able to find an opportunity to buy the original product. Within a week the fever left effects got out. Then we bought instead of “CREON” national ferment “Mikrozim”. It was hell”.

Genetic diseaseCystic fibrosis is a genetic disease caused by mutation of genes responsible for the production of fluids in the body. As a result, suffer all the organs, and patients from an early age to “drink pills”.

Only in Russia this diagnosis is made approximately 4,000 people (as of 2017). Before the advent of modern drugs (particularly mucolytics), patients rarely lived to adulthood.